Basketball and me

Basketball has long been my measuring stick for how my disease was affecting my game.

And no, I don’t mean that I make up a little game and say to myself if I can make 5, 3-pointers in a row I am cured.

But I did keep close tabs on how Lewy was affecting the various skills that basketball requires. Eye-hand coordination, stamina, and lateral movement. Could I still hit from long distance without too much overcompensation for lost strength? Could I still dribble drive around someone?

Notice how I am writing this, in the past tense. I ‘did’ keep tabs: That’s because sometime in April I made the call to take me out of the game — to quit my Old Man Hoops league playing in a full court run in a church gym in Irondale.

Since the 2016 diagnosis of Lewy body dementia, it was a slow but steady ride down. I could have easily discounted the changes to age — I was the oldest player out there. I am currently 62. I so want to dunk on Lewy.

But Lewy is a master of defense. There is no cure.

In the early years post diagnosis, 2016-2018, I noticed little deterioration in my game. In the middle years 2019-2020 I found my shot was short. and I got winded easier. I sucked it up and created a slogan “Step Up” to remind myself to take a step or two closer than 3-point land. It worked well enough to make me think I could still contribute.

But, alas, as the leaves turned colors and died at winter’s entrance late last year, it was abundantly clear I could no longer play.

I think I tried playing in March or April, and it firmed up my decision.

Now I’m into new challenges like buttoning a shirt, writing on the computer, tying my shoes.

The disease is similar to Parkinson’s disease in which proteins produced by the body form in the brain. The proteins over time kill off enough of the 100 billion brain cells (or neurons) in the average human brain as to be debilitating and ultimately fatal.

This brings me to really the most important reason for writing this. We are having our Lewy body fund-raising 3X3 MikeMadness basketball tournament this coming Saturday (Aug. 20) at UAB Recreation Center starting at 9 a.m. To find out how to register and about the after party at Cahaba Brewing go to MikeMadness.org

This will be our fourth MikeMadness since 2017; Covid knocked us out for 2020 and 2021. We’ve raised about $40,000 for research at UAB and and the Lewy Body Dementia Association, (LDBA.org) Also, see www.myvinylcountdown.com

Psssst. Hoops, Purple T-shirts, Karaoke, Dunking: I got inside info on MikeMadness hoops tourney

ME: (To man on the street. Waiting for the light to change.) You know I’ve never done this before.

MAN: Done what? (Looks me up and down with a mixture of confusion and hostility).

ME: Oh, I can’t tell you yet, I’m not sure if I’ve been authorized. But, (I lean a little closer) it involves dunking.

MAN: Oh hoops. You gonna try to dunk (slight smile on face as he sizes me up again. Yes this is a balding 59-year-old white man, he confirms). You? Dunk? No way. (Man was laughing now).

ME: Yes way. OK, I can tell you it will happen after the MikeMadness Basketball Tournament. You heard of that?

MAN: Well now that you mention it, I saw a poster about that. Gonna be at UAB?

ME: Yes, UAB Recreation Center, July 20, 8 a.m. You should get three buddies and sign up. It costs $150 a team and it’s for a good cause, to raise money for Lewy body dementia. It’s a fatal brain disease and I have it. I’m Mike of MikeMadness.

—Click here to sign up now —-

MAN: You’re Mike? Fatal disease? (Man steps back)

ME: (Laughing) No no, it’s not contagious. I’ve had it for three years and I’m still working, playing basketball and now this dunking. Oops don’t repeat that.

MAN: You telling me you are going to be dunking?

ME: Well, it involves me and it involves dunking. That’s all I can say now. Except it also involves some celebrity types like a certain Pulitzer Prize-winning journalist will be going for a dunk.

MAN: Where is this going to be?

ME: The after party and dunking will be after the tournament, starting at 1 p.m., at TrimTab brewery. It’s at 2721 5th Ave South in Birmingham.

MAN: And that Pulitzer Prize guy, you aren’t talking about John Archibald are you?

ME: Yes but don’t tell anybody, I’m not authorized yet. There’ll probably be other celebrities like disc jockeys and athletes. Last year Trent Richardson and Buck Johnson showed up.

MAN: You mean Archibald is gonna dunk? (Now laughing harder).

ME: Let’s just say, me and John will be called the ‘Splash Brothers.”

MAN: Well, let’s go then!

ME: Heck yeah, let’s go. (I reach out for a fist bump).

MAN: No, I mean the light has changed, time to cross.

THE FINE PRINT: Sign up now on the link above or go to mikemadness.org The tournament is free to watch July 20 from 8 am to about noon. Teams consist of three or four (if you want a substitute, most do) and team entry fee is $150. Sure to be collectible T-shirts, for $15 each, and are purple this year in honor of Prince who was, we hear, a great basketball player in his day. New this year will will be a 3-point contest. Entry fee is $20. I’m looking forward to seeing who will come in second place. The after party at TrimTab is at 1 p.m. and it’s free. The brewery will donate 10 percent of its proceeds during this time. Remember this is all about raising money for Lewy body dementia a killer brain disease which I have. Last two years we raised $25,000 combined. I’m looking to match that two-year-total this year with $25,000 bringing the total to $50K in three years. Ambitious yes? But important. Money raised will be going to Lewy body research at UAB and the Lewy Body Dementia Association. For more on my living with the disease plus music, check out www.myvinylcountdown.com

Daily Journal, June 4, 2019

Tuesday’s not gone yet. In fact it’s only 10:58 a.m. my time (Central). As I said in a previous post, I was going through some fluctuating symptoms the past few days. So much better this morning as I can type.

Fluctuations in symptoms is a hallmark of Lewy body dementia. I see it as the ultimate donut and hole cliche’. In other words I am thankful it is not just one long descent. I am thankful that I have a donut on some days. (No wonder I can’t shake this extra weight).

Describing the symptoms is hard for me to put my finger on it, literally, when I have those symptoms but let’s just say I don’t feel comfortable in my own skin, feel fidgety and fine motor skills like buttoning shirts, typing, and tying my shoes become frustratingly difficult. Coping mechanism? Maybe half a tab of carbidopa/levodopa or get out and walk or both.

I have doctor’s permission to up my dosage slightly during these events. It’s good medicine but it was developed to treat Parkinson’s not Lewy body specifically. I also take a med created for Alzheimer’s patients to help with the cognitive issues. I don’t know how that is working, but somethings going well as I’m three years into this thing and still playing basketball.

In fact at the MikeMadness tournament I am getting excited about seeing who is going to come in second.

Because they may as well go ahead and put my name on the trophy now.

I’ll be wearing my No. 33 Boston Celtics jersey.

Let’s outro with my greatest therapeutic treatment: Music.

I love to listen to the slide guitar intro by Lynyrd Skynyrd for the song Tuesday’s gone — beautiful.

Yay. $12,000 more for Lewy body dementia fight. Go MikeMadness

This posted earlier  today on AL.com.. 

Saturday was one of the most entertaining days of my life.

Why?

The charity 3-on-3 basketball tournament MikeMadness, after weeks of hype and hoopla, was played at UAB Recreation Center. It was by all accounts a rousing success.

We raised $12,000 with possibly more coming in, easily passing the $10,000 goal, just as we did last year in our inaugural tournament. In two years we have raised more than $25,000 forLewy body dementia awareness and research.

Lewy body dementia, is the second leading cause of dementia (after Alzheimer’s disease). The money is going to UAB and the Lewy Body Dementia Association. More on that in another column.

It’s not too late to donate by going here: www.mikemadness.org

So why was this one of the most entertaining days of my life?

Because I saw friends and family getting together, making new friends, playing competitive basketball and laughing. And besides a few bruises, jammed fingers and sore muscles, no one was hurt.

I got to play with my brother David, and two athletic nephews Joe Oliver, and Jake Vissers. We came in fourth of 14 teams. There were also three ‘elite’ teams that played their own mini-tournament.

Oh yes, and Buck Johnson, former University of Alabama and NBA star said he really liked my little left-handed runner in the lane. Oh shucks Buck.

Johnson was in attendance along with Trent Richardson, former running back in the NFL and at the University of Alabama. They delighted more than 100 fans and players throughout the gym by stopping to chat, pose for pictures and play a little round ball.

“I really appreciate what you all are doing,” said Johnson, who said he had a loved one with dementia.

Both played some, giving kids and grownups stories to tell their grandchildren (“I stole the ball from Buck Johnson,” I overheard one say.)

I want to thank so many people, those who donated money, time or just plain good words. There are too many to list but I want to single out several who put exceptional work into this: Ramsey Archibald; John and Alecia Archibald; Paul Blutter, Dan Carsen, Julie Vissers; Catherine, Lori and David Oliver; John and Joe Ellen Oliver; John Olsen; Jim Bakken; Kevin Storr (and UAB); AL.com and Michelle Holmes; and John Hammontree;  There are so, so many more.

I’m thinking ahead to next year

As I told folks on Saturday, spread the word about Lewy body dementia. It needs money for research but we need to get the word out. As one who has  been diagnosed with the disease, you can imagine I’d like a little more awareness coupled with urgency.

We need to name it: Lewy body dementia.

Mike Oliver is a columnist who writes about living with Lewy body dementia among many other topics. Reach him at moliver@AL.com . And follow his blog at www.myvinylcountdown.com .

Robin Williams’ birthday is on the same day as MikeMadness Lewy body event

This is an opinion column by AL.com’s Mike Oliver. See another version of this AL.com.

All this time I never noticed the ‘coincidence’ about the date. The MikeMadness charity basketball tournament date on July 21.  We picked it because it was approximately the same Saturday date in mid-July as last year’s tournament to raise money and awareness for Lewy body dementia – which I have.

I never knew it was also Robin Williams birthday. Until yesterday.

The birthday is an interesting coincidence, because Williams’s wife blamed un-diagnosed Lewy body dementia for his suicide.

When was that? His death date, I wondered.

It was on Aug. 11, 2014, Robin died.

My autonomic system came to life, a tingle, goosebumps.

On  Aug. 11 (2016) was the first time I was diagnosed with a degenerative brain disease. It was a Parkinson’s diagnosis, later switched to its lesser known cousin, Lewy.

Coincidences? How many coincidences do you have to have before they are not coincidences?

Some folks,  including my wife, the Rev. Catherine Oliver, associate pastor of First Presbyterian Church Birmingham, say that they don’t believe in coincidences.

So what does that leave us with? God? Messages from the universe? Robin Williams?

Albert Einstein said: “A coincidence is a small miracle when God chooses to remain anonymous.”

Writer Simon Van Boov said: “Coincidences mean you’re on the right path.”

But that leads you  to the question why is God leaving breadcrumbs, parceling out hints like we are all playing a Milton Bradley board game?

Some may be thinking right now, that a couple of dates lining up with Robin Williams and me and our tournament isn’t off the charts coincidental.

678sign.png

But let’s put it in context with other coincidences surrounding my disease.

The Numbers

If you all remember I’ve had other strange connections. One involved the famous scientific nun study which studied dementia in hundreds of nuns over their lifetimes.

One of the promising things about the study and the one I wrote about was that some nuns, upon autopsy, had Alzheimer’s, the leading type of dementia. But a small subset of those whose brains showed the ravages of Alzheimer’s did not present symptoms while they were living. This suggested there may be a self-made work-around that the brain is using in some cases. I wrote a story.

robinw.jpg

Months went by and I picked up a New York Times story on study again and started reading. Then saw the number. It said the study consisted of 678 nun participants.

What? That’s the exact number of albums I am reviewing. I did the counting myself right before I started my MyVinylCountdown.com blog last year. Now that kind of blew me away, I always start thinking about what are the odds of those two random things being the same number? A lottery-like long shot, you would think?

Some say either nothing is a coincidence or everything is a coincidence. Perhaps a coincidence is just an event that has much lower odds of occurring than something else.

So maybe it’s all about the odds. The numbers. After all, conception itself is a game of odds. Life is a game of  odds – which trees get the best sunlight, which rabbits are the fastest.

nun snip.JPG

M.I.T.. professor Max Tegmark, author of our Mathematical Universe said in Scientific American that our universe isn’t just described by math, but that “it is math in the sense that we’re all parts of a giant mathematical object.”

Tegmark recalls Douglas Adams spoof  “The Hitchhiker’s Guide to the Galaxy” that the answer to the ultimate question qbout existence and the creation of  the universe is 42.

That’s a little physics humor there.

 

 Who Am I

This next coincidence that has occurred regarding me and my disease seems like you could figure some odds on. But this one shook me more than the others because it was very palpable. It was a weekend day and I set out to do a little cleaning of my room, vacuum, dust, pick up clothes etc. I brought my IPod player and put it in a stand because music is my work partner. I put the whole 120G IPod (the Classic model) on random play. There were 7,500 songs being shuffled.

At one point while I was cleaning, I got inspiration for a blog post, basically about existence, who we are in the world.  Are we our brains? (A good question from one whose brain is under attack.) The title would be ‘Who Am I.

louie.jpeg

I ran downstairs and began typing away on my laptop. I don’t know how much time went by — but more than an hour. I came back upstairs, walked into my room where the music was still playing on random play. It took me a while to process this one.

The Who were on my IPod playing “Who Are You’ — you know the song with the recurring chorus that goes ‘who are you? who who, who who’? This  is an IPod that could play 20 days straight 24 hours a day, theoretically, never playing the same song from the 7,500.

I actually felt afraid for a minute, wondering if someone else was in the house pranking me? But how would they know what I was writing?

Coincidence?

Lastly, as I was thinking last night of writing about all this, I was casually running through some records. . On one shelf there was a big box set of some classical music. It was covered up with albums so I knew it hadn’t been pulled off the shelf in a while. I picked the box up and underneath it was sheet music with words and notes and cords for a song.

The song? “Louie  Louie” by the Kingsmen.

When I saw it, I remembered I had seen it before like 10 or 20 years ago.. I had forgotten about it. And I have no idea why we even had it in the first place as nobody in our house really plays music and that  frat boy Animal House anthem from the 60s would be an unlikely choice for anyone.

Coincidence? I don’t know so.

Mike Oliver writes on many topics but often about Lewy body dementia. See his blog at www.myvinylcountdown.com  See how you can help by going to www.mikemadness.org . Happy Birthday Robin.