Tuesday’s not gone yet. In fact it’s only 10:58 a.m. my time (Central). As I said in a previous post, I was going through some fluctuating symptoms the past few days. So much better this morning as I can type.
Fluctuations in symptoms is a hallmark of Lewy body dementia. I see it as the ultimate donut and hole cliche’. In other words I am thankful it is not just one long descent. I am thankful that I have a donut on some days. (No wonder I can’t shake this extra weight).
Describing the symptoms is hard for me to put my finger on it, literally, when I have those symptoms but let’s just say I don’t feel comfortable in my own skin, feel fidgety and fine motor skills like buttoning shirts, typing, and tying my shoes become frustratingly difficult. Coping mechanism? Maybe half a tab of carbidopa/levodopa or get out and walk or both.
I have doctor’s permission to up my dosage slightly during these events. It’s good medicine but it was developed to treat Parkinson’s not Lewy body specifically. I also take a med created for Alzheimer’s patients to help with the cognitive issues. I don’t know how that is working, but somethings going well as I’m three years into this thing and still playing basketball.
In fact at the MikeMadness tournament I am getting excited about seeing who is going to come in second.
Because they may as well go ahead and put my name on the trophy now.
I’ll be wearing my No. 33 Boston Celtics jersey.
Let’s outro with my greatest therapeutic treatment: Music.
I love to listen to the slide guitar intro by Lynyrd Skynyrd for the song Tuesday’s gone — beautiful.